Effects of Family Caregiver Training Program on Family Caregivers and Patients Outcomes in Terminal Care of Chronic Illness Patients
Article Sidebar
Main Article Content
Abstract
Care of chronically ill patients in terminal stage has impacts on family caregivers and patients’ outcomes. This quasi-experimental research with one-group repeated measured, aimed to study the effects of family caregiver training program on caregivers’ and patients’ outcomes. The subjects were 30 pairs of primary family caregivers and patients with terminal stages recruited based on selection criteria. Instruments comprised of 3 parts: 1) screening tools; 2) data collection tools including family caregivers’ outcomes (the confidence in using knowledge and skills in caring their patients, stress level, and satisfaction of family caregivers) and patient outcomes (number of advanced care plan conducted, and emergency visit for symptom management); and 3) research
process tool, the family caregivers training program developed by the researcher. The set of instruments were validated and tested for reliabilities. Data analysis: one-way repeated measure ANOVA (RM-ANOVA) was used to determine the confidence in using knowledge and skills in caring for their patients, and stress levels; and paired t-test was used to determine family caregivers’ satisfaction, at pre and post training program. Results revealed that the mean scores of the confidence in using knowledge and skills and the mean score of caregivers’ satisfaction at post training were significantly higher than pre training (p<.05). The mean score of caregivers’ stress was significantly lower than pre training (p<.05). The program developed can be used in promoting family
caregivers capabilities in caring for chronically ill patients at terminal stages.
Article Details
References
2. Lyer S, Taylor-Stokes G, Roughley A. Symptom burden and quality of life in advanced non-small cell lung cancer patients in France and Germany. Lung Cancer (Amsterdam, Netherlands). 2013;81(2):288-93.
3. Taweeyanyongkul N., Chaiviboontham S, Sumdaengrit B. Symptom experiences and symptom management in patients with advanced cancer receiving palliative care. Rama Nurs J 2015; 21(1):82-95. (in Thai)
4. Nimanat K. The end of life care. Songkla: Chanmuang Press; 2012. (In Thai)
5. Nirutisart S, Symptom control at the end-of-life. In: Lertmanosin P, Nuchprayoon I, Chatkaew P, and Sitthibun C, editor. End of life care. Bangkok: Printing Company Limited (1987) Limited; P. 165-75.
6. Nantachaipan P, Sowongwong P. Clinical nursing practice guidelines: palliative care in adult patients. Bangkok: Golden Point; 2015.
7. Puengrasamee T. Palliative care and end of life care. In: Lertmanosin P, Nuchprayoon I, Chatkaew P, and Sitthibun C, editor. End of life care. Bangkok: Printing; 1987. P. 15-23. (In Thai)
8. Ministry of Public Health, National Cancer Control Program (National Cancer Control Programs). Agricultural University of Thailand: National Cancer Institute, Department of Medicine; 2013-
9. Morrakot P, Nilmanat K, Matchim Y. Effects of the program to promote adaptation of relatives of caregivers of chronic patients with chronic diseases. Thai Journal of Nursing Council 2015; 30(1): 33-45. (In Thai)
10. Meecharoen W. Family caregivers of cancer patients: Roles’ adaptation and quality of life promotion. Rama Nurs J 2015; 21(1):82-95. (In Thai)
11. Morrakot P, Nilmanat K, Matchim Y. Adaptation of relatives, caregivers, patients with chronic illnesses with chronic diseases. In: Prince of Songkla University, editor. Hat Yai Academic Session 4, Research for Thai Society Development. Songkhla; 2013. (In Thai)
12. Harding R, List S, Epiphaniou E, Jones H. How can informal caregivers in cancer and palliative care be supported? An updated systematic literature review of interventions and their effectiveness. Palliative Medicine 2012;26(1):7-22.
13. Grant M, Sun V, Fujinami R, Sidhu R, Otis-Green S, Juarez G, et al. Family caregiver burden, skills preparedness, and quality of life in non-small cell lung cancer. Oncology Nursing Forum 2013;40(4):337-46.
14. Yuttaisong N. A research synthesis to help family caregiver of people with cancer in stress management [Thesis]. Bangkok: Mahidol University; 2010. (In Thai)
15. Putsadu P. Stress, coping, relatives, caregivers and management of behavioral and emotional problems in patients after traumatic brain injury [Thesis]. Bangkok:
Mahidol University; 2013. (In Thai)
16. Janze A, Henriksson A. Preparing for palliative caregiving as a transition in the awareness of death: family carer experiences. International Journal of Palliative Nursing 2014;20(10):494-501.
17. Intarasombat P, Monkong S, Churaitatsanee S, Vongterapak S, Prasanaikom W, Pronsawatchai P, et al. Comprehensive care of hospitalized older adults: transitional care from hospital to home. Rama Nurs J 19(2):194-205. (in Thai)
18. Henriksson A, Arestedt K, Benzein E, Ternestedt BM, Andershed B. Effects of a support group programme for patients with life-threatening illness during ongoing palliative care. Palliative Medicine 2013;27(3):257-64.
19. Hendriksen E, Williams E, Sporn N, Greer J, DeGrange A, Koopman C. Worried together: a qualitative study of shared anxiety in patients with metastatic non-small
cell lung cancer and their family caregivers. Support Care Cancer 2015;23(4):1035-41.
20. Aoun S, Deas K, Toye C, Ewing G, Grande G, Stajduhar K. Supporting family caregivers to identify their own needs in end-of-life care: Qualitative findings from a stepped wedge cluster trial. Palliative Medicine 2015;29(6):508-17
.
21. Angelo JK, Egan R, Reid K. Essential knowledge for family caregivers: a qualitative study. International Journal of Palliative Nursing 2013;19(8): 383-8.
22. Greene A, Aranda S, Tieman JJ, Fazekas B, Currow DC. Can assessing caregiver needs and activating community networks improve caregiver-defined
outcomes? A single-blind, quasi-experimental pilot study: community facilitator pilot. Palliative Medicine 2012;26.
23. Hudson, Lobb EA, Thomas K, Zordan RD, Trauer T, Quinn K, et al. Psycho-educational group intervention for family caregivers of hospitalized palliative care patients: pilot study. Journal of Palliative Medicine 2012;15(3):277-81.
24. Hanucharurnkul S. Self-care: Art and science of nursing. Bangkok: V.J. printing; 2001. (In Thai)
25. Aekkul T. Behavioral and social research methods. Ubon Ratchathani: Rajabhat Institute Ubon Ratchathani. 2001. (In Thai)
26. Pfeiffer E. A Short Portable Mental Status Questionnaire of the assessment of organic brain deficit in elderly patients. Journal of the American Geriatrics Society
1975; 23(10): 433-441.
27. Chewaskulyong B. Palliative care. (in Chewaskulyong B. Ed.). Chiang Mai: Vientiane Printing Co., Ltd. 2003. (In Thai)
28. Hendrix CC, Bailey DE, Jr., Steinhauser KE, Olsen MK, Stechuchak KM, Lowman SG, et al. Effects of enhanced caregiver training program on cancer caregiver’s selfefficacy, preparedness, and psychological well-being. Support Care Cancer 2015.
29. Tieman JJ, Swetenham K, Morgan DD, To TH, Currow DC. Using telehealth to support end of life care in the community: a feasibility study. BMC Palliative Care 2016;15(1):94.